July 1st, 2023
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I just started a summer job at a retirement center as a Culinary Associate. Its my first real job and it’s been pretty good so far except I’m very uncomfortable by something my managers do after hours, which is a sort of game show with the Alzheimer’s patients as contestants. The concept is that the host, one of my managers, asks the people afflicted with Alzheimer’s to list things within a certain topic (historical events, celebrities, their own loved one’s names and birthdays). Whoever can name the most wins. Very simple, and in my eyes, very immoral.
I kind of broached the subject with one of the people involved, and they told me that it was all good and fair because the Alzheimers all gave their consent over five years ago, when this first began. Oh and I forgot to mention they profit off this, because they sell tickets to “the public” (the audience seems to always consist of the same old grease-ball Italians who aren’t related to anyone involved) and also let the audience bet on the whole thing.
I work directly with several of the contestants during the day and mentioned the game and they had no idea what I was talking about.
I’m not even currently intending to sue or anything, as the money is good, but can they even do this legally speaking? And if they can’t and get in trouble for it, would I be held responsible if I attended one of them— I would like to witness one of these things before the summer ends out of pure morbid curiosity.
July 1st, 2023
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I was about to say almost exactly that. Making them remember things helps their brain, but having an audience for that is dehumanizing and sick.
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It’s done “after hours”. These are sundowning dementia patients. There is no therapeutic intent here. Anyone involved in this “game” needs to be fired immediately.
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Asking people with Alzheimer's to remember things that they can't can oftentimes be traumatic. It's better to tell them stories of things they remember so they don't get scared. My mom had FTD at age 50 and not too long ago I was helping care for her. The things I learned off the bat was to work within her reality. I agree that how these caretakers are going about it, it seems not helpful, insensitive and unprofessional, but that's just my own opinion
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That’s what I was thinking until OP said that they’re making money off of it.
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My mom is in an Alzheimer’s home now. They do trivia, they ask them when they have lived , about their kids. Sometimes my mom insists she had a sought named Nancy, Well, that’s her sister. It’s her reality and the moment. I doubt they are hurting any feelings and it is probably helpful to get them to use their brains (and even perhaps keeps some record if they start to decline. They only thing that bothers me is that they bet on it like a game. That part is just pretty crass behavior.
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And the audience.
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After hours makes me suspicious. Who wants to recall stuff when fatigued? Also, avoiding detection by the boss.
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The audience part is what makes me doubt this story
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It’s more likely to stress them out than help in any way
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Here’s the landing page for the biggest and most powerful group that advocates for old people not being abused. That’s exploiting them.
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Just a way for the OP to make it sound like everyone involved sucks, except him because he's SO CONFUSED AND JUST DOESN'T KNOW THIS IS WRONG OK
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Well. That was an adventure.
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This is….complicated. If they were just having the game for residents, there would be nothing wrong with it. In fact, it could and probably be looked at as good and healthy for the residents because mind games exactly like that are good for Alzheimer’s patients so long as it was done theraputically. However, to sell tickets to the public and make money puts it in a whole different category. They are justifying it by saying the residents consented to it. But they had to have legal capacity to do so when they agreed to it. Now, Alzheimer’s or any other mental incapacity can have the legal capacity to wnter into a contract. Legal capacity is a bit different and with dementia you can have bad days and good days. But I highly doubt these guys had any training or even know how to recognize legal capacity for when they “agreed” to it.
But let’s just say the contract, if it actually exists, was valid at the onset. Contracts really have to have a time limit. Courts and the law don’t like contracts in perpetuity. Also, the law would not look favorably upon this as an unconscionable contract because at some point each one of these people would no longer have the capacity to end it.
What can you do? Well, that tough especially if you like your job. I am certain that at least one person’s family would be VERY upset over this and they would have the ability to do something about it. But in your position you don’t have contact info and approaching a family member about it would almost certaintly cost you your job, minimally. But this also sounds exactly like the type of story an investigative reporter would love. Do you have a local newspaper or news tv station that does those type of stories? Contact them. They can imvestigate and possibly blow it open for the world to see or at the very least, with asking questions, the management might just stop.
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I think it is a HIPAA violation to have strangers in to laugh at them and bet on them.
Horrible and reportable.
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In the UK care industry, there are important tenets we operate by. 2 of them are 'Safeguarding is everyone's duty', and 'If you think it's a Safeguarding might be a Safeguarding issue, it IS a Safeguarding issue.'
It would be considered your duty to report this, just based on your concern. And if this was ever investigated, everyone who knew and didn't report would be in serious trouble (assuming the authorities found there was abuse here).
So yes you should report, even if you are unsure.
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NAL but MSW/PhD with a MSW focus on child/adult welfare.
No, this is straight up elder abuse. This is actually pretty serious. Most states have criteria for elder abuse that fit the following;
The first is that they must be either disabled (physically or mentally) or unable to reasonably give consent due to an otherwise mitigating circumstance. Most commonly the later is substance abuse. This fits the first condition. It doesn't matter that they gave consent 5 years ago.
The second is that they are (1) suffering physical or emotional abuse, (2) being financially exploited, and/or (3) being subject to neglect. Usually #2 is interpreted as someone taking their wealth but it could be interpreted to exist in this situation. Since their disability is being used as entertainment at their expense it would be considered emotional abuse. Even if they gave consent in their most lucid moment earlier that day if they become anxious or upset in the time of the event it could be considered emotional abuse. This is something a reasonable person could anticipate.
The last is they must be a certain age. Most common is 65 or older. However, a person below that age who has lost the capacity to make decisions for themselves due to safety issues is often protected by child welfare laws, which are usually even more strict.
This is almost certainly not legal. It's also unethical and they could lose their operating license due to it. If they do that they could not receive federal funds. Most likely it would just put them into a probation period though.
So here is the problem for you personally. People who work at these facilities, regardless of their position, are put into a class by federal law. You are a 'Mandated Reporter'. That means if you don't report it you are violating federal, and likely state, laws. I won't pretend that this puts you at great risk. It's rarely prosecuted. However, there are two instances where it does get prosecuted, if someone dies or it makes the news. This will eventually make the news. When it does they will come after everyone who knew whether or not they still work there. Administration (their preferred target) is going to claim they knew nothing about it. After that they are going to go after any other staff they can get. They are going to want as many fall guys as possible since elderly people vote frequently and this will anger them a lot. Most likely you are just vulnerable to a fine, $20k is possible. Prison time isn't likely but not unheard of. Being banned, for life, in working in any institution or industry that caters to the elderly/children is very likely as is the permanent loss of any professional license you can possibly get.
Reporting tends to be technically held anonymous. Sometimes it's not in practice though. You just call a phone number (usually adult protective services) and describe what is happening. You absolutely should give your name/position and ask for a reference number of some sort. Document the time, date, reference number, and name/position of the person you talked to. Some states will even send you this via email if you request it. I recommend you do. They won't give you further info later but the act of reporting actually fulfills your obligation as a mandated reporter. Documenting it creates a record that prevents liability or personal prosecution in most states. If the state does not follow up it's on them. A good paying summer internship isn't worth it.
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So prodding the patients to use their minds and stimulate their minds is somehow wrong?
Glad you’re in cooking and not patient care. Next thing you’re going to be asking about is it is wrong to make a patient undergo physical therapy after they break their leg.
Prodding patients to use their minds is fine.
Strangers placing bets on the responses IS NOT fine.
That’s like a bunch of skeezy Italians hanging around the physical therapy center, putting money on how many times the amputee falls down. “I got a hundred that says he falls eight times today.”
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Did you read the last line? He hasn’t even witnessed what he’s condemning.
Can you say troll?
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If this is the case, not sure which country or state you are in you need to report it to department of health care and also OMBUDSMAN.
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Depending on the stage of dementia, the patients are not able to use their minds. It would be very confusing to them. They also cannot consent to this treatment. This is a horror show.
My husband has dementia and he isn’t capable of making that kind of decision. I am his DPOA.
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If they are engaging, I would say they get some joy out of it. Beats being treated like a vegetable.
I Op also started out claiming to have seen an event. In the last line now he said he hasn’t seen one. So, in other words he’s making it up as he goes.
He hasn’t even seen one of the events happen. You did read that, yes?
I’m guessing it’s a troll post.
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Not when they’re sundowning. That would be like forcing the person with a broken leg to do physical therapy right after it’s broken (before it’s splinted/reset/put in a cast/etc).
The OP is a mandated reporter as noted by others on this thread. That means he needs to report what he heard. He doesn’t need to see it. The fact that he was told about it is enough. Regardless of whether this is a “troll post” or not, people are giving advice based on the case as described in the original post. If it isn’t real, we’ve wasted a few minutes typing. But if it is real, then we are helping this person make the right decision in protecting the residents who are being taken advantage of.
Also, did you see the comment where the OP said a few of the “contestants” have had breakdowns (again, it does not matter if the OP has witnessed this, just that he has been told). Sundowning happens to dementia patients in the late afternoon/evening. They are more agitated. They could seriously get violent because of this. I’m not kidding. They can go into a rage from you just trying to stop them from cleaning a table with a used Kleenex.
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He CLAIMED TO HAVE SEEN IT. Then he later said he wants to see it with his own eyes. Which is the lie?
A cook isn’t a mandated reporter.
The fact op alludes to a possibility of him suing; for what? That alone suggests this isn’t a real situation.
As well, I believe op changed the original post
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The activity seems like a very normal, even therapeutic activity for folks in memory care. Selling tickets is bizarre. Who is buying tickets? What a weird show that would be. Are you sure the “grease-ball Italians” aren’t family members or residents themselves?
My mom was in a place like that, and bingo was a big deal. There were even small cash prizes. I played once when visiting, but the staff told me I shouldn’t win because I wasn’t a resident. No problem.
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No, this is actually good for them and they aren't hurting anyone. I think it's a really creative way to help them work their brains. They deserve to have some fun too.
I have more of a problem with the audience. BTW, my grandmother who I cared for both had Alzheimer's and one of those sleazy Italians.
She wasn't actually sleazy but what you said wasn't cool.
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I used to work in a memory care facility. Done during the day with an activities director, I could see this as a fun activity, but only between residents.
What you described is seedy and abusive after-hours gambling with sundowning residents on display for the entertainment/profitability of spectators. Their POAs would likely be the ones who need to consent as most are oriented to themselves at only certain portions of the day.
I think this is worthy of a report to your local elder protective authority to let them assess.
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This sounds highly illegal, and also extremely predatory and abhorrent.
Considering you have no qualms with painting the audience in a certain light, I think you know damn well this is wrong..
Like, this is the type of thing you'd hear about in a news story and think to yourself "What the fuck is wrong with people..." and here you are like "I honestly just don't know if this is alright or not"
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The retirement center had them, or a guardian, sign a "terms of service," for lack of a better term, when they started living there.
I’m not even currently intending to sue
What would YOU sue for? Being offended?
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THIS IS ELDER ABUSE
You need to report this as a complaint to the state department of health. Once you do that they will send a complaints surveyor in to investigate. I recommend you include the time and dates this happens and as much detail as possible. Describe the people who come and place these bets. How many people are there? Get the names of the residents that this is happening to as well. Is famioy aware of this happening? Is the activity director the one throwing this? Is this scheduled on an activity calender that you can take a picture of and submit to state?
The more detail you have the more the surveyor can do, otherwise it's very hard to prove what the surveyor doesn't actually see themselves. This is a huge deal and it needs to be reported to the state. This is elder abuse.
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At first I thought eh, it's in house.
But then you added thay they sell tickets to this thing and let the audiences bet on them.
I'm gonna guess you're a mandated reporter since you work in Healthcare. This is elder abuse. It needs to be reported.
I'd find a new job if I were you. This place is morally questionable at best and abusive at worse. I wouldn't be associated with them if I were you.
Good luck.
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they sell tickets to “the public”
This made me gasp out loud. Your answer is absolutely correct. This is financial/material exploitation of elders. 100% elder abuse (in America). Not to mention everything morally wrong going on here.
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Please report this to Adult Protective Services as possible elder abuse if you’re in the US. Let them decide. I find it abhorrent as you’ve described it.
This is NOT therapy, this is some freaky weird humiliation game, imo.
And legally (yes, a lawyer here), it is not legal. These patients are incompetent and only their next of kin or guardians can possibly give consent after full disclosure.
Additionally, the patients should receive payment (a cut of revenue) from this horror, even if their family did agree and if the State decides it isn’t abuse.
This is abusive and informed consent has not been given. This is not therapeutic.
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Ehh Alzheimer’s patients can give consent if they are able to understand what is happening and explain it back in their own words.
Which is not what OP described, which was "got consent 5 years ago" (insufficient even if true)
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To be fair, OP is a culinary assistant that recently started..
Isn’t it far more likely they’re misinterpreting what’s happening than a random audience paying to attend a gameshow at a nursing home?
Like it seems obvious to me that those greasy Italians are someone’s family..
Playing devil's advocate: if the situation is such that even the culinary assistant knows it's wrong...it's WRONG.
Or put another way, if the new dishwasher and prep cook thinks it's wrong for 'a bunch of greasy Italians to bet on 'who's gonna wintonight's round of Memory Lane,' it's probably wrong.
I dont need to be a mechanic to know not to drive around on just the rim if my flat tire shredded.
I dont need to be a butcher to know I shouldn't eat spoiled meat.
And I don't need to be a healthcare worker to know it's wrong to gamble on which patient will win a round of a pretend gameshow that the didn't consent to enter and mocks their cognitive decline.
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I’ll just say that you have a lot more faith in the general population than I do. But the sheer ridiculousness of what OP explained makes me believe they’re probably not the best narrator
You have so little faith in humans being decent, that you jump to the conclusion that it's op that's in the wrong and not the people betting on Alzheimer's patients "doing therapy". That's ass backwards. If you have little faith in humanity then it's the "Alzheimer's gameshow therapy gambling" that should stand out to you, not the single person who thinks it's wrong.
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Hey. He didn't say "people". He was clear. Grease-ball Italians.
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you’ve got humanities priorities all fucked up.
I’m not the one who thinks grandparents are being bet on like horses, because I have more faith in the decency of humans than that.
This story is probably fake, as OP’s post history is all over the map and they haven’t responded to a single comment here as far as I can tell. But you should probably have less faith in the decency of humans. I could cite plenty of examples worse than this story.
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Hanlon’s razor can be sharp.
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Im really hoping you're correct. Honestly as someone who has gone to multiple nursing homes and worked in a behavioral home I cant even understand how this would happen. Every place I've been requires that you sign in and state your purpose. There may or may not be cameras in the public areas this is happening at and you can't exactly just turn them off without getting into a lot of trouble. How do you advertise this to random Italian guys that's not related to anyone? Alzheimer's patients often have very clear moments when they'll be able to talk to you as if they have no dementia or will be able to accuse people of abuse (until it gets very severe). Why would anyone who has ever worked with dementia patients take this risk?
Either we have an unreliable source or this nursing home is breaking many standards allowing this to go unchecked by anyone higher up and hires nothing but idiots(which some care places sadly do). Also as someone who works with dementia people if they are deemed capable of consent and agree in the informed consent to continue to partake in anything after they lose their ability to consent that's valid(5 years ago reference). They will then have to list a surrogate or get one appointed to them who can then make decisions for them and ultimately pull them out of anything they originally consented to if it's no longer in their best interest.
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My best friends grandparents lived in a place that do something similar; but it’s family in the “audience” and the game shows were similar to the newlywed game. It was actually pretty cool.
I assume this nursing home was doing something in the same vein.. add some Italian family members to the mix of and I can definitely see how that might look concerning to an outside party. I think OP needs to look into it, absolutely.. but I’m not sure if reporting it without speaking to anyone else about what they saw could be a bad idea.
Edit: word salad
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I'm sure it's fun for family to hear some knowledge they thought their loved one forgot for good at times. I get that too that's why I was hoping they're just a poor narrative! I'm sure the Italians are there with a loved one and maybe they took their own liberty to bet on whose loved one would win. Which is a bit unethical imo on their behalf if that's what they're doing but not something the home is actively taking part in. My favorite nursing home game was jeopardy where they were asked questions based on history or culture throughout the decades they lived through. They always had a lot of nostalgia from remembering their childhood and being able to share it with the young folks
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If it’s done “after hours” it’s wrong, period. It doesn’t matter if there is betting going on or not. It doesn’t matter if there is an “audience” who is not related to the patients. This is not meant to be therapeutic. If that was the case it would be done during normal hours. Dementia patients sundown in the late afternoon/evening. They are way more likely to get agitated and sometimes violent.
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Stick to gaming, kid
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Lol
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“The person living with dementia maintains the right to make his or her own decisions as long as he or she has legal capacity”
Capacity is determined by a healthcare provider. Competence is determined by a court. If someone with Alzheimer’s is deemed to have legal capacity then they can consent on their own.
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I quit my career and life to be my mother’s sole caregiver for 7 years. I had durable power of attorney. I usually don’t flex like this, but I know what I’m talking about. So don’t.
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Anecdotal stories don’t apply to a whole population. That “lawyer” saying all Alzheimer’s patients can’t make decisions on their own is factually incorrect. It’s a case by case basis. That’s literally all I said. Read the link buddy.
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If someone is in memory care, they are likely legally not competent to make their own decisions.
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They can't give consent if they are in memory care. I deliver medical equipment and if we deliver to a memory care facility we have to get a staff member to sign off for the delivery.
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Don’t be disingenuous.
The state entity handling elder abuse and adult protective services will no doubt determine that these patients - confined to a dementia ward/program - were abused by the facility.
I would not want to be the facility’s legal counsel in this case. No, on second thought, I would love to get this call because this would be a huge, billable project defending the facility.
A consent formed signed when the patient may (or may not) have been competent is beside the point. Does this need to be reported? Yes. Will APS stop this? Yes. Could family members sue the SNF for its abusive actions? You can sue almost anyone over almost anything, but I see settlement dollars in this facility’s future.
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Don’t be disingenuous.
The state entity handling elder abuse and adult protective services will no doubt determine that these patients - confined to a dementia ward/program - were abused by the facility.
I would not want to be the facility’s legal counsel in this case. No, on second thought, I would love to get this call because this would be a huge, billable project defending the facility.
A consent form signed when the patient may (or may not) have been competent is beside the point. Does this need to be reported? Yes. Will APS stop this? Yes. Could family members sue the SNF for its abusive actions? You can sue almost anyone over almost anything, but I see settlement dollars in this facility’s future.
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This is a pile of stuff.
Having alzheimers patients bet on what they can remember? Kind of adorable, also an actual therapeutic technique.
Having, in your own words, "greasy Italians" do anything.
I mean...its obviously illegal to gamble on elderly people.
But holy shit calling people greasy Italians is not helping your point.
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Thank you! Wtf. I don't agree with the betting and inviting the public after hours... F that. But "grease-ball Italians"??? Definitely sus and makes OP look like an AH.
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See that’s what I thought at first but apparently there’s been a couple instances where they have become lucid during the game and then had a breakdown over the humiliation of how they are being treated, being forced to recite knowledge for strangers who are betting on them…
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It’s so deliciously dystopian
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The betting is nasty.
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Why is it immoral?
Isn’t that sort of thing that is recommended to help jog their memories?
the selling of tickets is immoral and unethical
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Yeah that’s fucky. Report them but prepare for the possibility of being black balled.
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First of all, grandpa, no one “peels” potatoes anymore… heard of an electric peeler before? Second of all, the vast majority of commenters recognize that this situation is at the very least questionable. Final of all, did you need to swear in every sentence? What are you, a sailor?
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If there’s an electric potato peeler, your job is in serious jeopardy.
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NAL. I do work with dementia patients. I am unclear here, so I will ask.
You, a culinary associate at a summer job, don't like dementia patients being asked questions and bet on by "grease-ball Italians", and you think this is immoral. Then, because you ask them during the day and they don't remember, think it means they were abused?
I'm not clear where this elder abuse is you speak of. I am very concerned about your bigotry though. I hope the grease-balls don't touch you or anything.
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A culinary associate who is also, evidently, a cafe worker, firefighter, substitute teacher, and sentient spider. OP’s post history is a trip.
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You left out being in charge of the EU's trade agreements. Maybe I shouldn't question that tiny bit of racism. He does so much for the world.
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